Saturday, November 24, 2012

Is speech really everything? - Part 3

What happened before, you can find here: Is speech really everything - Part 2

So, to cut the story a little short - we went together (J., Patrik & I) to that appointment. Somehow - I confess - we were prepared to the worst possible thing. Especially J. as the last appointment Patrik had two years ago, the doctor was not particulary nice. Not to Patrik, not to me. Actually, at some point she had raised her voice at me, that day.

When we were called in - surprise. There was almost nothing we didn't get - the referral for the genetic tests, referral for the CT, appointment at the psychologist from her team, that same day. As we took the day off, we decided to go.

Psychologist was very nice. We talked and she actually worked with him. And she was quite impressed about him, as we were seeing what actually he showed her.
Later we agreed for new meeting and we left.

The August ended, nothing particulary happened. In September only I went with Patrik to the psyhologist and again I was told only positive things.  Agreed for new meeting a week later. Well, till this day I don't know what we were doing there. We were out of her office in, perhaps 20 minutes; just with her saying that she cannot give the recommendation for the school we want him to go. As he has 'moderate to severe' mental retardation. I looked at her and thinking if I fell in different reality.
Patrik did most of the things she wanted him to do in the previous two appointments. Yes, sometimes it took him time, but he had done at least 80 percent of the things, she gave him to do/show.

A little bit later we got new ST in Ljubljana and we started to work with her. At first he needed some time to adjust to her, her office and her way of work. And quite some months later, she was impressed by him. She called him different lovingly names.

At some time when during the session we talk about the things Patrik should practice at home and Patrik saw that her attention was not on him, he stated to do his task intentionally wrong and waited for her to see it. When she didn't, he corrected his wrong doing so apparently, that she had to see it. And at few times she told us, he was testing her.

During that months we had also an apointment on Faculty of Education in University of Ljubljana, with professor defectology. Of couse we went there. It was a part of evaluation and the lady was one of the members of the Commission.

When we came we asked her to let Patrik get to know the place and of course her, and surprisengly she told us that this appointment was more meeting with us, than working with Patrik. We were a little bit puzzled, but anyway... we talked.

We told her which scool we thought was the best for Patrik and also gave her our rasons, and she totally agreed with us. She told us, that her recomendation will be that. 

I don't need to tell you that a part of the stone we wore on our backs fell off of our backs. What we didn't realised was...

... that part of the stone just gave the place for new and bigger one. Which fell on our shoulders approximately month later...

Friday, November 23, 2012

Brother and Sister playing

So rarely happens in this house that brother and sister play together. As you all know, beeing Autistic, Patrik is not really keen in social playing. But when he decides to play with his sister, nothing stops him. Not even my demanding that Loris has to practice her piano...

This happened almost 2,5 months ago. I think it was end of Patrik's first week in school. Well, not everything what you can see here is something we are proud of. We were a little bit negative surprised when we saw Patrik trying to hurt Loris as she didn't understand him, what he wants, but at the end, everything sorted out right and Patrik - at least we think so - understood that kind of behaviour is not acceptable.

But anyway - it's nice to see them playing together. I know Loris misses that. And that she misses that A LOT!!! 

p.s.: This is not Loris playing... yet...

p.p.s: I'm happy to tell you, Patrik did understand that hurting someone is not the right thing to do... It seems that every lesson gets to him...

Monday, November 19, 2012

Foggy days

This week weather prognosis: 
* Monday - Low clouds with Shower possible --- around 10°C
* Tuesday - Low clouds --- around 9°C
* Wednesday - Low clouds --- around 9°C
* Thursday - Cloudy with a Shower --- around 10°C
* Friday - Low clouds --- around 9°C
* Saturday - Mostly cloudy and mild --- 14°C (if you believe it!)
* Sunday - Rain --- 10°C

Just some photos from Saturday to bring back my happy mood in this short foggy/cloudy/raining days that are ahead of me. 

I really need sun!!!

Saturday, November 17, 2012

Another Award for my blog...

My blog has been nominated for the Liebster Award 

a interesting blog by a dad with autistic son. This was a surprise and nevetheless an honour and I am thankfull that he finds my blog intersting and written with passion.

I was asked to do a few things to qualify for the award. Let me list them: 
- Thank the person who gave you this award (well, even if that wouldn't have been on the list - I would have done it);
- Display the Liebster heart on your blog (did it)
- Nominate 3 to 5 up-and-coming blogs who have less than 200 subscribers (at the end of the post)
- Post 11 things about myself (hard one)
- Answer the questions given to me by the blogger who nominated me (even harder...)
- Create 11 questions for my nominees to answer (oh, h..l,)
- Notify my nominees and provide a link back to this post
- No tag backs (what would be the purpose to do that?)

So, here I go, some of them - if not all - you already know:

* Although I love pencils and fountain pens, I mostly write with ballpoint pens. If I could, I would write with goose feather. 
* Love books. The more, the better.
* Hate what this world economic crisis has done to my life and our family.  But this is good. If I would have been indifferent, I wouldn't search for new & better chances to change it.
* I need challenges.
* Get quickly bored.
* Have three published novels and several short stories... and much, much  more of them in my head.
* Suffer from cronic lack of time.
* Listen almost all types of music - love Irish folk music.
* Want to escape to some other country.
* Love wind, sea and sun & laughter.
* Am not scared of heights.

Answering the questions: 

1) What in your opinion are the three books or series of books people should read before they die and why?
Huh, this is but hard one. I have my favourites, but to say that they are the ones, one must read before they die - I will not go that far. Usually I leave the opinion to the reader. Perhaps just names of some my favourite books. If you will read them or did read them, you might understand why. The random order:
- Les Miserables by Victor Hugo
- Pride and Prejudice by Jane Austen
- La catedral del Mar (Cathedral of the Sea) by Ildefonso Falcones
- Trinity by Leon Uris
2) Where would you like to take a two day hike and why?

Two days hike - at the coast - favourite places: Land's End, Cliffs of Moher, Ring of Kerry or over through the Highlands - although all those hikes would take me more than two days and I just wouldn't mind.
3) What is your favourite quote?

My son's quote: N'Č BAT! in translation: "No fear!" Simple, but powerful.
4) What one person would you most like to meet?

I thought about this very much and I just couldn't find any particular - perhaps my late uncle Vincent who died in Australia without ever knowing/seeing him.
5) What is your greatest passion?

Books & Writting... All others change as I & time are changing.
6) What is your favourite blog post by another blogger?

There are several favourite blogs and blog posts from different blogger - to choose just one of them would have been unfair.
7) Why was your favourite teacher, your favourite teacher?

Although I never had favourite teacher - I should mention my primary school English teacher, who encouraged me in learning English with saying I aknowledge years later (keep in mind you know much more than they - you speak their language, they are not speaking yours).
8) If you had to shift to another country, which country and why?

Ireland, UK or Spain. No particular reason - somehow attracted to me.
9) What is your favourite TV program ever?

Cannot think of any....
10) When did you stop believing in Father Christmas?

Don't remember exactly - around 8 years old.
11) What question should I have omitted from this group?


So, my nominees - not quite fair, because I would love to nominee several of them:
- Looking for blue sky - a blog from a mum who helps me see what might wait for me in the future
It's a crazy world! - she writes serious things if a humorous way... I would love to see her perform as a stand up comedian - hey Jointy have you thought about it?
-  Foxglove Lane - as her photographs help me get back to Ireland withouth actual traveling... I just mixed my imagination, my memories with her photos and I'm already there... - reading her story helps me stop to be sorry for myself;
- Bright Side of Life - altought she was nominated from some other blogger, I just have to nominee her too. It seems that she is an inspiration to so many. She will have less work to do... :o)

So 11 questions: 

1.) What was the most important lesson you've learned from your parents, but you aknowledged that years later?
2.) What would you do if you would have a chance to change your career?
3.) Besides your closest family members - who's advices you follow the most?
4.) If you would have unlimited resources of money - what would you do first?
5.) Which memory of yours is your favourite one?
6.) The most embarrassed moment of your life? (optional)
7.) Your best decision in your life?
8.) Your worst decision in your life?
9.) Were you raised in big family?
10.) Do you have big family of your own?
11.) Which animal scares you the most and why?

So this is it. I never thought I would master this. Quite a work... :o) for someone with cronic lack of time...