Sunday, September 30, 2012

Is speech really everything? - Part 2

How it began - you can read here: Is speech really everything? part 1

Approximately the same time, I tried to get new appointment - after two years - for Patrik with the one and only (sad isn't it?) specialist for Autism in the country.

The last time we were there, was two years before, and honestly, never ended right. Even the first time, when we had been there, seeking for the confirmation of our suspicions. But that is completely different story.

So I took out of Patrik's medical map the last report we got from her (I have copies of all his medical report at home) and read it again. My smile was bitter as I remembered what we were promised two years earlier and although many calls, never got.

Patrik was promised to be accepted into her team in Autum. Immediately when she would had begun with, and in the report, I held in my hands, that was written. We were supposed to get a call in September/October 2009. 

Never happened. I called them several times, almost every month; from November 2009 to April 2010, but I just didn't get an appointment. Every call I made, there was new excuse. The team was not established yet. They didn't managed to complete the team. The psyhologist left and they are looking for new one. That excuse was the best. And sadly it really happened. Approximately three months after the team was finally established, psyhologist left. 

We stopped trying to get into the team as at that time we heard about RDI (Relationship Development Intervention) programme and Son-Rise. After reading The Miracle Continues - from Son-Rise and starting to learn more about RDI and read the Forgings New Pathways from RDI, we decided to try it. The RDI programme. We were told about very lovely and helpfull consultant Elisa and contacted her. 

We realised and it was obviously that medical system in our counrty had almost nothing to give Patrik. I write "almost" nothing, because in our town's medical centre Patrik had OT and ST. And that was it.

So, I took a copy of medical report, underlined  all the important information, written down all my possible contact information (mobile, fax, e-mail address) and asked one simple question: Will Patrik ever have another appointment at the specialist? I faxed it.

Altough "only" six hours passed and I received no reply - I thought that two years of waiting was more than enough - I called them.

At first I got a machine. I was informed they moved on another location, with new telephone number. Great! I started to be more undestandable why I was not called.

I called the number I got from the machine and finally got a nurse on the other side. I told her who I am and why I was calling. You should see my face, when I was told, that they didn't move, just changed the PHONE number. Everything else stayed the same, including the fax number.

When I explained her that I was waiting for the appointment date and that I sent her the last medical report, she started to excuse herself that they just got it that day. She was trying to persuade me that the report was circling around the hospital for several days. I hardly convinced her I sent it thatsame day.

I was very dangerously close to an eruption, but managed to hold myself back and stayed as calm as possible. ( I may sounded calm, but in my mind I...)

I wanted the appointment date. She told me, no sooner than October. I was left speachless. I asked if there is any possibility for earlier date. She was - I suppose - looking through the book and then I heard her:

"Well, I have one date, but I doubt you will manage to come."

"Can you give me the date?" I was still trying to stay calm.

"I'm positive you  will be on your holidays then," I heard her.

"Would you be so KIND to tell me the date?" my voice was starting to became higher and stronger.

"I told..." I just couldn't helped myself any more. My patience were on its edge.

"How can you know when we are on our holidays when even I don't know when we will go?!

That made her give me the date. July 21st, 2011, at... near noon. In only about two months.

That one was tough. I managed to get an appointment for Patrik in two long years.

If I knew what was waiting for us, I would never persisted to have this appointment...



  1. Oh, Petra..... This is not good, in fact it is outrageous. :(

    1. I know Di. But even 'better' comes...